Wednesday, September 7, 2011

Hump Day Update

Lydia's legs seemed a bit weaker when she first got up this morning.  After a little while though her walking improved.  I decided maybe it was because she slept until almost 8am and with her being flat that long, it could have increased her intracranial pressure a smidgen more.  That's the problem...with my nursing experience I know just enough to get me thinking too hard sometimes.

We did decrease her night time dose of Decadron to 1mg last night.  She initially was dosed 4mg twice a day for 48 hours, then was on 2mg twice a day.  So, now she's taking Decadron 2mg in the morning and 1mg at night.

Dr. Gold ordered  Prilosec right from the get-go and it really has helped prevent GI upset.  I remember 2 years ago when she was on Decadron she would cry all the time because her stomach was hurting.  Thankful for the stomach protection!

She continues to have a voracious appetite.  She wanted a pizza for snack today, and ate half of it!

She hasn't been as playful compared to yesterday, but still has an upbeat attitude.  We were able to homeschool a little today.  Lydia is a self motivated learner and completes her tasks quickly.  Her handwriting has changed.  Trying to be creative to keep her engaged in learning, instead of discouraged because of the changes her body is enduring.

When Willie got home I went out for a little while.  I swung by Sears to look for some cotton dresses for Lydia since her pants and skirts irritate her sweet expanding belly.  Didn't buy any, but found some cute comfy church shoes instead.  After shopping I drove out to Mechanicsville to pick up my grain for making bread.  It was nice to be alone in the truck and have a little praise and worship ~ just me and Him.

Came home and was attacked at the door by 2 sweet, smiling little boys!  Getting out for a couple of hours felt like a mini vacation.  I should do that at least once a week.  Felt like I had taken a deep breath and released a boatload of tension.


You are my hiding place; 
you will protect me from trouble 
and surround me with songs of deliverance. 

Psalm 32:7

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